Ohio Newz

Dad hopes to raise awareness for daughter's rare disease

Dad hopes to raise awareness for daughter's rare disease



2018-06-14T00:00:01+0000

"This was the first time I've encountered something that I couldn't fix": The Father of a 3-year-old girl with a rare disease hopes to raise awareness by telling her story.

Brooke has a disease called cystinosis. The disease is hard to diagnose because it mimics other conditions.



More Ohio Newz

Today @Starbucks debuted its new Mango Dragonfruit Refresher. Unlike the Unicorn Frappuccino, this one is here to stay. https://t.co/d5OOIDzsEy via @malloriesullivn

📷 @SarahBrookbank

3-star general named as president, and CEO, the National Veterans Memorial and Museum.
https://t.co/m7zZ8RKRQS

Avoid Vine St Downtown just north of 12th - pedestrian hit by car; fire truck on scene. @Enquirer

Congratulations to @TaraMolinaTV and @asugdenwews5 for their national Murrow award for "The Meaning of Zack Proof." https://t.co/rYXxyXYngF @RTDNA

On June 29 @JoeBiden will come to Cincinnati to fundraise for candidate for Ohio Governor @RichCordray https://t.co/WUSAHtvzN6

Woman busted with $55 worth of seafood in purse.

https://t.co/Mr2321cTs3

As outrage builds over border policy, Trump, GOP set meeting https://t.co/X46F6N9PQA

Verizon to end location data sales to brokers https://t.co/l0xshjXSTW

Here is the 'Seven Days of Heroin' video that has now won a National Edward R. Murrow Award @RTDNA @Enquirer
https://t.co/FIEzhHzzrv

Invasive plant with sap that can cause blindness found in Virginia https://t.co/QWS0WF4lCl

Ever wanted to speak Quechua, an indigenous language in the Andes Mountains? This Ohio State summer program helps high school students do just that, all while improving their Spanish skills through music and culture.

https://t.co/DE5Dunw5q8

Millennials are packing their bags and heading for the coasts, according to a new study, but Cincinnati is also on the map. https://t.co/om35TTrTnn via @SarahBrookbank

June has been full of some ups and downs so far! It's been hot these last couple of days for sure. That changes today.

Trump to meet with GOP amid outrage over immigrant children detentions https://t.co/P23BJK0R1J

Murder charges dropped against man in Upper Arlington stabbing https://t.co/m6LBNPyiYI

Home Privacy Policy Terms Of Use Contact Us Affiliate Disclosure DMCA Earnings Disclaimer